Sunday, November 11, 2012
Andrew's 6th birthday and October neurologist visit
Andrew was born with hydrocephalus, water on the brain, and at the young age of 6 months they did surgery in Bulgaria to put in a shunt to control the extra fluid made in his brain.
September of last year, Jen noticed something different about Andrew's valve and the tubing that runs from it. We called the neurologist to see if we should be concerned. They asked if there any signs of dizziness, nausea, or disoriention. We told them that there were none and they told us it was probably something normal that we didn't notice before. We were welcome to come in for an appointment if we were concerned, but we weren't and considering the 2 1/2 hour trip to their office, we opted against a visit.
We went to our normal scheduled appointment in April. They did a CT scan and x-rays. The neurologist looked over the scans and told us that the shunt had malfunctioned and that everything looked normal on the scans. He then scheduled an appointment for this October to check and see if anything had changed.
Sure enough the shunt was still broken and his scans still showed everything was normal. The neurologist then scheduled an appointment for a year from now where he will check one more time and then schedule surgery to remove all the parts of the shunt. He told us it appeared that he had outgrown hydrocephalus and that keeping the shunt in could cause problems in the future.
A year and a half ago during our first visit to the neurologist, we asked whether Andrew would ever outgrow his hydrocephalus and we were told not to count on it. He said it was a 1 in a 1,000 chance that he would and that there were only 2 ways that we could tell. One would be that he removes the shunt to see, but he won't do that because he ends up having to put them back in because the patient did not outgrow it. The other way would be if the shunt malfunctions.
Looks like God wanted to really make a statement. He healed our son. The main reason we were able to adopt him was because he had a special need and now here he is without this need. Our son is the 1 in a 1,000 and we are so thankful to Jesus for His work in our son's life.